Monday, April 28, 2014

Seizure monitoring--Day 1


This is Elsie now, at 2:30, but her day didn't start out so peaceful. 


We went first to an outpatient office where she had to get all the electrodes put on and then have a PET scan, which is a lot like an MRI.  I can type that in one quick sentence like it was no big thing.  Believe me, it was horrible.  On a scale of 1-10, I give it a 15.  Elsie hates to be restrained and hates to be messed with.  She screamed, cried, and ground her teeth.  She fought and fought and fought and never gave in.  We sang, we rocked, we tried to soothe her, but settling down only happened when they finally got the sedation medication into her system.  That was after about two hours of struggling.  




Then we brought her over to the hospital.

We got her settled in her room and after another technician had to fix a few more of the electrodes, we finally got her wired for monitoring.  She has a lovely mesh covering and a Rapunzel-like white ponytail where the wires are enclosed.  They're long wires that she's getting tangled in.  And they don't come off until she's discharged, at the earliest Thursday.  They'll be doing various testing daily looking for why Elsie is having seizures and where in the brain they are coming from.  They would really like for her to have a seizure tomorrow.  So, this may be the one and only time I ask you to pray that she has one.  

Thanks for praying and being in this with us!  


1 comment:

Anonymous said...

You guys are incredible. Praying for you all.