Elsie needs your prayers

Seizures are scary.  If you’ve never experienced one, trust me.  Apparently they look differently in different people.  For us a seizure means that my poor child loses control of her body, her eyes roll back, and she convulses.   Unfortunately, Elsie’s medication is not controlling these seizures.  We went for a long stretch without seeing any and so it seemed the medication was working.  But recently she’s been at the full dosage and is still having them.  In fact, this past Wednesday she was sick and tired, and the doctor said those can both be triggers.  We saw five in one day.  They’ve all been short.  We’ve never seen one longer than two minutes and on Wednesday they only lasted about 30 seconds.  

So, her specialist is telling us that they need more information in order to know how to proceed.  They want to do more testing.  This means that Elsie will be admitted to the hospital for round the clock EEG and video monitoring.  She’ll have a PET scan too and maybe more.  She’ll be admitted on April 28th and may be there for up to five days.  

Elsie still has a VERY short attention span.  She’s constantly in motion.  She hates to be constrained and loves to run and climb and be swung.  How we are going to keep her somewhat content in a hospital room for days is beyond me.  

Please pray for our family during that week.  Please pray that the doctors will get some answers from this testing and know the best form of treatment for Elsie.  And pray too that the seizures would end and we would not have to deal with this for months and years to come.