Thursday, November 20, 2014

OT, PT and Speech

Part of Elsie's recovery has been to go to therapies.  Thankfully we got her right in to a wonderful facility that's really close to my parent's home.  So, twice a week she has occupational therapy, physical therapy and speech therapy all in a row.  Each one lasts a half hour and she's done really well with the guidance these ladies provide.


OT: we talk a lot about Elsie's sensory needs...activities that help our active little lady to calm and focus.  And we play in a way to try to keep her attention.  



PT: Elsie's physical therapist has seen the most progress.  When we began she was still really weak from surgery.  So, one of her goals was to walk unassisted 50 feet.  The first day she accomplished that one!  She's also working on squatting, going down a step, and keeping her heels down when she walks.  


Speech: just as before surgery, Elsie still doesn't talk.  She babbles and she uses some sign language to communicate, but no spoken words, yet.  At her follow-up appointment both the brain surgeon and her epilepsy doctor told me, "I don't see any reason why she shouldn't development language."  Now that her brain is clear from the "fuzz" of that electrical activity, we should see some developmental strides.  But I've also been told it could take five to six months from the time of surgery to see any big changes.  So for now, her speech therapist is working on giving Elsie a new form of communication, using pictures to make a choice.  We're trying to teach her that pictures represent objects that she will be given.  So we've made little laminated pictures of food, toys and other things.  We're hoping this will be a good system for both of us.  

All of these therapies will continue when we settle back home.  And Elsie will return to preschool which will also include many of these types of activities.  With all of this input we're hopeful our little lady will grow and develop and learn new things at a steady uphill pace!  Can't wait to see her continued progress.  





Sunday, November 9, 2014

Grand-love

Our children have amazing grandparents.  Seriously, all four of them love the four of us like crazy and will do anything for us.  Right now I'd like to brag on my parents a little bit. 



They have been and continue to be amazing examples of sacrifice and love during this trying time.  When I told Mom surgery would likely be in Orlando, she said, "Well, I can be there, whatever you need."  And she was there, supporting me, taking care of Emma, even sleeping on that hard hospital bed so I could have a good night's sleep at the Ronald McDonald house.  



Since coming back to their house we've really just made ourselves at home here.  I pick up as much as possible, but there are toys all over all the time, and they don't complain.  They say things like, "what will we do when you little munchkins have to go home? It'll be so quiet around here!"  



They've provided so much (housing, meals, babysitting, even free speech therapy! Not to mention emotional support) and give with such joy.  There are no words for that kind of generosity, no thanks that can be given.  Even if we could somehow repay them, it would be an insult to try.  Their gift is an expression of their love and devotion to us.  That's the nature of sacrificial, unconditional love.  It's freely given, undeserved, unable to be repaid.  

Mom and Dad, thank you for the incredible gift of this fall with you.  We hope we will love our children and our future grandchildren like this.  We all love you so much!