Elsie's medical appointments and all the paperwork that goes along with them in moving to a new city is taking lots of time and attention. Last week alone she had three appointments. We've seen the new pediatrician. We had her evaluated for outpatient speech therapy and physical therapy. Unfortunately there's a waiting list for occupational therapy. Now they want her to see and orthopedic specialist and a developmental delays specialist. In feeling a bit swamped in all of this I said, "Mark how many specialists does Elsie need to see?!" His response was a great reminder, "As many as it takes."
In the meantime we are still seeking opinions about her surgery. We drove two hours to see one specialist at a highly respected hospital. He spent an hour with us, covering very basic info and looking over the discs containing the various tests that she had done in Florida. His opinion was quite contrary to "she's ready for surgery now." He basically said we can wait. Wait for this medication to fail. (It still hasn't, by the way. Elsie hasn't had a seizure since we left the hospital in FL.) Wait to see if another medication might work. Wait until next year and then maybe talk about surgery.
This report was rather frustrating to us. It doesn't confirm that surgery is the way forward. But it didn't seem like he took all that much time to come to this conclusion. A whole team of doctors who have seen Elsie all year are saying surgery can help. Nevertheless we're still seeking more opinions. One from another highly respected medical institution north of us an hour, and one in town. Pray these appointments are set up quickly and that the way forward is clear. Thank you!
