Friday, October 10, 2014

Post callosotomy

(I'm learning so much these days, including how to say that word!) 

I guess I fed Elsie a few too many O's last night.  She was vomiting off and on all night, and this morning too.  Pray she can keep something down as she feels better throughout the day.

More importantly Elsie had a seizure at about 2:30 am.  Normally her seizures last about one minute.  This one lasted for three minutes and then they gave her medication to stop it.  No fun for this momma's heart to see.  I tried to sleep as I worried that we've made things worse and not better.  Because the nurse was really attentive to Elsie's needs, I did pass out on the couch from 3-6:30 or so.  

This morning the epilepsy team said that they did get good information from this seizure.  It looked a little different from the last seizure, but it's more accurate since it's post callosotomy.  They would love to see more seizures over the weekend to confirm what last night's has shown.  But right now it's looking like it's coming from one area.  

Also Elsie seems to have mellowed a bit since surgery.  Obviously she's under a lot of pain meds, so that's part of it, but docs say that it may be a result of the callosotomy.  They said it's kinda like you're watching a fuzzy TV station, but trying to follow the show.  After the callosotomy that background noise is gone and patients can become less irritable and more focused.  That could be a good thing for Elsie.  Time will tell exactly how much mellowing is temporary and how much is permanent.  

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