So...hard news from the epilepsy team this morning. After yesterday's seizure it is still not clear exactly where Elsie's seizures are coming from. They quickly cycle from left to right side and back again. The area they think it's coming from hasn't been covered completely in electrodes. Tomorrow they will do surgery to add more electrodes and disconnect the bridge between the two sides. It's called a corpus callosotomy. Then they'll wait for more seizures. After that there's a chance without the quick cycling between the two sides they'll be able to better locate the abnormal tissue on the left. If they can't, they're suggesting a hemispherectomy, which is disconnecting left side completely.
We're all a bit overwhelmed at this news, but we're still trusting in this team of doctors to know what's best for our little girl. Ultimately of course we trust in God and know that Elsie is in His care. Your prayers are sustaining us. Thank you!
4 comments:
I miss medicine. I wish I'd majored in medicine. I REALLY respect these healers!!
Have been praying for her and you and will continue to do so...feel compelled to say am really nervous about disconnection....my understanding is that it's drastic and permanent, possibly leading to lifelong issues. I know you've sought different opinions but maybe this is time for another one?
oh i am praying! thanks for all the updates.
Thanks for your prayers. We're very apprehensive about the hemispherectomy. And that's why we're praying it won't need to be the solution for her. We're also fairly confident these are some of the top doctors in the nation.
Post a Comment