Our travel down here was just fine. It was tiring and stressful at times, but overall they did great. Our connection to the second flight couldn't have been smoother. We got off one flight and walked two gates to the next one.
Our appointment this morning went well. We've been seeing the epilepsy doctor all year, but today we met the brain surgeon. He was kind and personable and explained everything in a very matter of fact kind of way. "We will cut a C-shaped incision and open her up and put the electrodes in. Then we wait for one or more seizures to be sure we know where the abnormal tissue is. Then we take that part out." There was a little more to it than that, but that's the main idea.
Q: How long we do we wait for a seizure? They aren't daily. A: As long as it takes. She will have one. The longest they've waited is about a month. Q: What if she just doesn't have one? A: One time in the three years he's been at this practice has that happened. The child's EEG was miraculously normal. And so they went back in and removed the electrodes. Q: What if she yanks on these wires coming out? She's really active. A: Lots of kids are. They suture the wires to her skin. If she pulls, it'll hurt.
So that's what we know. Now we enjoy the week until the fun has to end. Monday we go back for pre-op blood work. Surgery is Wednesday morning.
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